Sanfilippo Syndrome

Family With Local Ties Creates Viral Video To Help Save Daughter With Life-Threatening ConditionBut by the time Eliza is five, she may lose the ability to speak because of a rare condition called Sanfilippo syndrome.
‘Elementary’ Star Jonny Lee Miller Works To Raise Awareness About Sanfilippo SyndromeOne local family is cheering him on from their Delaware home.