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Sanfilippo Syndrome

(credit: The O'Neill Family)

Family With Local Ties Creates Viral Video To Help Save Daughter With Life-Threatening Condition

But by the time Eliza is five, she may lose the ability to speak because of a rare condition called Sanfilippo syndrome.


(credit: CBS3)

‘Elementary’ Star Jonny Lee Miller Works To Raise Awareness About Sanfilippo Syndrome

One local family is cheering him on from their Delaware home.