cbs3_blue-on-white_2013 Philly_KYW_new Philly_94WIP_new CBS Sports Radio 610 Philly_WPHT_new

Latest News

Pa. Mom’s Efforts For Heart Transplant For Autistic Son Highlights Complexity Of Decision

View Comments
transplant web site DL
Pat Loeb

Reporting Pat Loeb

Featured Gallery
Namaste: Yoga Poses For Beginners

For more trusted health

news and information,

visit CBS Philly's

Check Out

By Pat Loeb

POTTSVILLE, Pa. (CBS) — A Schuylkill County, Pa. mother has turned to an online petition web site to try to get a Philadelphia hospital to put her adult son on a heart transplant list.

She claims the Hospital of the University of Pennsylvania improperly considered his autism in deciding against a transplant for him.

HUP has declined comment, but other transplant programs explain that the decision making process is not necessarily easy.

The International Society of Heart and Lung Transplantation has guidelines that almost all transplant programs follow. They look at a patient’s medical condition, but also a host of other factors.

Dr. Rene Alvarez, medical director of Temple Hospital‘s heart failure and transplant program, says the selection committee there includes social workers, psychiatrists, and occasionally ethicists.

“So it’s not just about their heart, it’s about their other organs, their mental health, their social support, their psychosocial environment, their compliance history,” he says. “Do they use drugs? Have they used drugs? Things like that.”

rene alvarez Pa. Moms Efforts For Heart Transplant For Autistic Son Highlights Complexity Of Decision

(Dr. Rene Alvarez. Photo provided)

Alvarez (right) says the team has a duty not just to the patient, but to the donor’s family to make sure their gift serves its highest purpose.

He says there are about 2,200 heart transplants a year but as many as 50,000 people on the waiting list.

“So transplantation is not the solution for the treatment of heart failure,” he adds. “And that’s why there are mechanical hearts and other therapeutics being investigated, because transplantation is only a therapy for a very few.”

View Comments
  • http://takingonacause.com/2012/08/19/denied-a-heart-transplant-because-he-is-autistic-please-sign-petition-and-have-3-people-and-they-tell-three-people-to-sign-petition-on-change-org/ Denied A Heart Transplant Because He Is Autistic, Please Sign Petition and Have 3 People and They Tell Three People To Sign Petition On Change.Org « Taking On A Cause by Patsy McCaw-Yager,Englewood, Fl.

    [...] Pa. Mom’s Efforts For Heart Transplant For Autistic Son Highlights Complexity Of Decision (philadelphia.cbslocal.com) [...]

blog comments powered by Disqus
Listen Live!

Follow CBS Philly

Like us on foursquare

Now on CBS Philly

nowon lovearts1 Now on CBS Philly nowon kidcast 03161 Now on CBS Philly nowon dec12 rac Now on CBS Philly  Now on CBS Philly nowon 3onyourside Now on CBS Philly nowon deal Now on CBS Philly dunkin homepage tile Now on CBS Philly  Now on CBS Philly