By Mike DeNardo

PHILADELPHIA (CBS) – Hundreds will gather Saturday night for a fundraiser to fight cystic fibrosis and support a 27-year-old Lower Merion woman who is suffering from the fatal disease.

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“The thing about Emily is, when you see her, she looks healthy. But she’s not,” says Liza Kramer, Emily’s mother.

Emily Kramer-Golinkoff takes 30 pills a day, and spends three to four hours each day in treatments for the cystic fibrosis (CF) that has stolen two-thirds of her lung function.

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There’s no cure for CF and those who have it typically don’t live past their mid-30’s. A year ago, Emily’s family and friends made a video and launched a web site to raise awareness about the disease.

Liza says they’ve raised $220,000 for CF research.

“She’s a fantastic 27-year-old girl, woman, and she has lots and lots of people who really, really love her,” Liza says.

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The fundraiser at Material Culture in East Falls is sold out, but you can still watch the video and help at emilysentourage.org.