The young girl who was the inspiration behind “Hannah’s Law” has died.
This week’s 94WIP Mike and Ike Unsung Hero is John Neal, who established a bill to help fight Krabbe disease.
The Senate unanimously passed a Krabbe disease screening bill on Wednesday.
Hope For Hannah: Bucks County Family Asks Phillies Fans To Wear Blue In Honor Of Their Ailing Daughter
The request is in honor of Hannah Ginion, a two-year-old from Bucks County. Hannah has Krabbe disease, a rare, degenerative disorder that is, unfortunately, deadly.
Pennsylvania lawmakers are expected to vote soon on a bill called Hannah’s Law, named after a little girl in Bucks County. 3 On Your Side Health Reporter Stephanie Stahl has more on how it could change a routine test.
Krabbe Disease, which robs its victims of motor skills, is not curable, but advocates say early detection and treatment is critical for newborn babies.