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Krabbe Disease

(Photo credit: 94WIP)

Unsung Hero: John Neal

This week’s 94WIP Mike and Ike Unsung Hero is John Neal, who established a bill to help fight Krabbe disease.

Sportsradio 94WIP–10/24/2014

(credit: CBS3)

Senate Passes Krabbe Disease Screening Bill, Also Known As “Hannah’s Law”

The Senate unanimously passed a Krabbe disease screening bill on Wednesday.

10/08/2014

(credit: CBS3)

Hope For Hannah: Bucks County Family Asks Phillies Fans To Wear Blue In Honor Of Their Ailing Daughter

The request is in honor of Hannah Ginion, a two-year-old from Bucks County. Hannah has Krabbe disease, a rare, degenerative disorder that is, unfortunately, deadly.

09/26/2014

(credit: CBS3)

Health: Hope For Hannah

Pennsylvania lawmakers are expected to vote soon on a bill called Hannah’s Law, named after a little girl in Bucks County. 3 On Your Side Health Reporter Stephanie Stahl has more on how it could change a routine test.

09/15/2014

(At the state capitol in Harrisburg, former Buffalo Bills quarterback Jim Kelly urges passage of legislation to require screening of newborns for Krabbe Disease.  Credit: Tony Romeo)

In Harrisburg, A Push To Screen Newborns For Rare Neurodisease

Krabbe Disease, which robs its victims of motor skills, is not curable, but advocates say early detection and treatment is critical for newborn babies.

10/21/2013

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