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Cystic Fibrosis

Advocates Call For Bill That Could Help Cure Disease, Find Better TreatmentsSupporters gathered on the Main Line Friday to push for the bill.
Local Woman Named White House 'Champion Of Change'At just 30-years-old, she's already raised $1.5 million for research.
Health: Local Woman To Be Honored At White House For Her Efforts To Raise Awareness About Cystic FibrosisA Montgomery County woman will be honored at the White House Wednesday for her efforts to fight a devastating disease. The President will recognize nine people as Champions of Change for being on the front lines of finding new kinds of treatments.
Sarah Murnaghan Receives "Shining Star" Award From Local Chapter Of Cystic Fibrosis FoundationSarah Murnaghan received The "Shining Star" award from the Delaware Valley chapter of the Cystic Fibrosis Foundation at the annual Wishes and Dreams Winter Ball.
2nd Child In Philadelphia Sues Over Lung Transplant List A second child at a Philadelphia hospital is asking a federal judge to order that he be put on the adult waiting list for a donated lung.
Medical Ethics Expert Decries Politicking In Girl's Lung Transplant Case"When a judge or a congressman or a bureaucrat says 'I'm going to add you' or 'I don't like the rules,' this comes at a price," says nationally known medical ethicist Arthur Caplan.
Judge Issues Restraining Order Allowing 10-Year-Old Pa. Girl To Be Temporarily Added To Adult Lung Transplant List U.S. Senator Pat Toomey (R-Pa.) says a judge has ruled to allow 10-year-old Sarah Murnaghan and potentially other children to be temporarily added to the adult list for a lung transplant.
Local Case Causes Officials To Mull Over Guidelines For Lung Transplants And ChildrenUnder current regulations, adult lungs go priority to patients over the age of 12.
Health: Will Sarah Be Saved? Local Family Fights National Organ Donor RuleThere are several new developments in a desperate struggle to save a Newtown Square girl’s life, including a congressman getting involved.
Pa. Girl's Parents Challenge Lung Donor RuleThe parents of a 10-year-old Pennsylvania girl who has been waiting for a lung transplant for a year and a half are calling for a change in the policy governing organ transplants.
Philadelphia Restaurant Raising Money For MANNA With Monthlong Cocktail SpecialRex 1516's Chef Regis Jansen has stepped down due to his fight with a deadly illness. Now, the restaurant is stepping up with a new cocktail to raise money for the organization that helps him.
Hundreds To Gather For Cystic Fibrosis Fundraiser In PhiladelphiaHundreds will gather Saturday night for a fundraiser to fight cystic fibrosis and support a 27-year-old Lower Merion woman who is suffering from the fatal disease.